Wednesday, 17 September 2014

wowzers

wow. met some inspirational people today. all disphagia sufferers but with very different stories to me. A 12 year old girl, a lady who had fallen down stairs and damaged her brain, a man who had a heart attack whilst driving his car. All different but shared my desperate experience of not being able to eat and drink. All had been pretty much abandoned by the NHS and all had by shear persistence found our guardian angel, Sumathi Sinnapan and her Vital Stim treatment.
We all gave 5 minute talks on our experiences and gave glowing references. about both Sumathi and the treatment to the audience of NHS professionals, Stafford MP Steven Lefroy, the mayor and various others.
Everyone ( mum, Keeley, Sumathi ) was in tears while I talked which I took as a positive sign. 
I just hope that I have played a tiny part in getting this treatment more widely available and known to the nearly 3 million people in this country who suffer from swallowing problems, and given them hope that there is something out there that can make things better.

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