Thursday, 31 July 2014

mum

quiet day with mum and the kids. Feel fine. A bit stressed about the whole swallowing, epiglotis thing but will just have to deal with it until we know more.
Continuing with lymphodema neck exercises.

Wednesday, 30 July 2014

clinic

had an appointment at the lymphodema clinic for some treatment on my neck, back again in 4 weeks and maintaining a set serues of exercises to see if it makes any difference.
My mouth is extremely dry obviously due to not being able to drink but alleviated by regular rinse and good old fashioned spit. 
My tongue is very nearly healed which is great. Makes it doubly frustrating that I can't begin to eat. 
Hey ho, progress of sorts.


my lymphodema exercise collar is quite a fashion statement

Tuesday, 29 July 2014

back

missed a day. Where did that go? We travelled home yesterday so it was a long day, that's my excuse.
Visited orthodontist this morning to pick up my protective gum shield which will stop me constantly biting my poorly tongue when I'm asleep.
This afternoon had X-rays to try and work out my swallowing problem. It turns out my epiglotis isn't functioning properly and I have now had to go to nil by mouth. This is mainly to make sure I don't pick up a chest infection by too much liquid going down my wind pipe. This may be the price I have to pay for getting rid of the cancer. Hope not but the speech therapist will send a report to the ent doctor and we will meet him to discuss options.

Sunday, 27 July 2014

Saturday, 26 July 2014

off

no blog today. too hot. sorry. I'm fine by the way.

Friday, 25 July 2014

frog

croaky as an old frog today so talking down to a bear minimum, much to the relief etc etc.
If I'm honest it's too hot to do anything today. I find that I can walk on the flat absolutely fine but introduce some gradient, like the path to the beach, and I 'm knackered. So at the house all day until wondering in to Padstow for tea (not me obviously) later.
Anyway I haven't been totally unproductive, I've hung some washing out, listened to some Smiths and lounged for a England! Where's that in the Commonwealth Games by the way?



Thursday, 24 July 2014

surf

another beautiful day here in Cornwall. Jamie Oliver's for lunch, or in my case, watching people eat lunch! Hey ho, my time will come.
Mouth seems to be improving a tiny bit every day, really dry and uncomfortable, but it is discomfort rather than pain.
Still no joy with the swallowing but on Bob the lollipop man's advice, I am going to try some jelly & ice cream this afternoon and force it down. He thinks it's psychological. Will report results later.