Wednesday, 19 November 2014

fin




So it's time. Time to put this blog to bed. I have written about 10 draughts and binned them. The reality is that I am neither eloquent or brainy enough to put into words all of the stuff I am thinking, but here goes.

On being voted out of whatever saturday night tv show is your poison of choice, the crest-fallen participants invariably talk about the'amazing journey'(©.S.Cowell)they have been on. Well, having just read through this blog from start to finish, to misquote a line from Crocodile Dundee, 'that's not a journey, this is a journey!'

I had genuinely forgotten most of the stuff we have been through since last December, when I first went to the doctor with a lump in my neck. This amnesia is obviously part of the recovery process.

What stands out for me is how lucky I have been. Firstly, and above everything else, for having the most fantastic wife and children in the world. They have had to endure some horrible stuff and have given me all the strength I needed to come out on the other side. We are now making up for lost time and enjoying each other's company and the simple pleasures in life; going on holiday, a Byron burger, messing about, just watching rubbish telly together. It's fantastic.

It goes without saying, but I will say it anyway, my mum, sister, mum-in-law, brothers in law, uncles, aunt and cousins have been there at my side all the way. I love you all.

My friends and followers on this blog have been constant sources of encouragement for which I am very grateful. 

My good fortune goes right back to the very beginning last December, when I first went to the doctor. Maybe because he was a young doctor who, rather than fob me off with anti-biotics, sent me for blood tests, then when the results came back negative insisted on sending me to e.n.t. for a scan, just to be sure. I genuinely think that if the lump had been anywhere but my neck I would have ignored it, but because dad's non-hodgkins lymphoma started with a lump in his neck, I followed it up. As I said, lucky.

I have spoken many times about our good fortune in being so close to UHNS, where the facilities and staff (if not the car parking) are second to none. The prospect of having to travel miles every day for appointments, treatment or scans would have made the whole experience much harder to deal with both emotionally and logistically. The staff in the cancer unit, radiotherapy and e.n.t. have been, without exception, fantastic. I have to mention Wendy Robson our e.n.t. nurse, she has been with us from the very start like a guardian angel, and her support has been unbelievable.

I could go on and on. I was lucky enough to be 'well' enough to start and finish my radiotherapy on time. Lucky enough to live 20 minutes up the road from the only person in the country who offered me a treatment which allowed me to eat again (thank you Sumathi). Lucky enough to be able to afford the treatment. Lucky enough to have a GP and consultants who were open minded enough to refer me for the vital stim treatment. Lucky enough to meet some of the other amazing people who have benefited from vital stim.

Unbelievably this blog has had 27,000 hits since I started it! I know mum's been on it a few times but that is truly amazing and humbling. I hope that anyone going through something similar will be able to see that there is a way out at the other end and that no matter how bad things get, with the right attitude and support it is possible to make a positive out of such a negative.

A couple of weeks ago Keeley said that she would be glad to see the back of this year and I knew exactly what she meant, but I had to disagree. I now feel, in spite of the horrible stuff we have had to endure this year, that we are in a much better place. I appreciate my friends and family and what we have so much more. I feel much more positive about everything and feel I have a good perspective on what is important in life, and I am reminded of it every day.

This picture says it all.












Saturday, 8 November 2014

salon

I toyed with the idea of keeping the girly curls but it just wasn't happening. My hair was in various places: curly, thin, thick and fluffy. Not a good look so I had a good chop at Salon Keeley. She didn't offer me anything for the weekend unfortunately.

Thursday, 6 November 2014

hols

I'm still working on my summary, so in the meantime here is an ace picture of me and my wonderful family in Cornwall last week.


Tuesday, 4 November 2014

curls

pI have a bad case of what I believe is called the chemo curls. My hair is growing back curly on top, thin at the back and sides. It's time to start again so I'm off to the barbers for what my grandad used to call a tuppeny all off. Results tomorrow.

I'm also having a sort through my unused drug stash today. Might be some time.




Monday, 3 November 2014

chords

visit to consultant today for the old camera down the nose throat inspection. All fine, vocal chords a lot less swollen than last time. Back again in 6 weeks, then expecting it to be maybe a 6 month break before the next appointment. A sure sign that things are going well.
Saw the lovely Wendy our ENT nurse and had a chance to talk and thank her for her incredible support this year. She told us that this ( meeting the patients well on the road to recovery ) was the best bit of the job. Makes you realise that these fantastic people have to deal with stories like mine every day. Incredible. An inspiration to all of us.

Saturday, 1 November 2014

apology

my post 'profound' on the 25th oct came  out all wrong. From the start this whole thing has been like a stream of consciousness that I have just poured out without thinking too much about the consequence of what I am saying, relying on the fact that it was the truth as I saw it to get me through.
This has worked fine until the 'profound' post where I'm afraid my lack of eloquence let me down. I could easily delete it but feel it is important to leave everything on here as a record of the last 9 months, warts and all.
In trying to put into words my changing feelings I think I came over as dismissing everything and belittling the whole struggle against cancer, just because I have beaten it. I am accutely aware that for many people, some of whom may read the blog, the struggle is far from over.
I apologise for the flippant tone of the post and encourage you to keep the faith and join me next week when I will be formally concluding the blog .

Ta dudes and dudettes