tube

visit to dietician today which went very well and then very badly. I was expecting that, if I had maintained my weight since the last appointment, which I had, that I could have my feeding tube out. No go.

She was delighted with my progress in the last month ( I haven't used the tube for 4 weeks) but wasn't able to organise the removal without a referral to the right person, which could take a month.

It won't be a month because I am now going to use my insider knowledge of how these things work (built up over the last 9 months) to bypass the protocol and get it sorted, hopefully in the next week or so. We shall see.